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After working for almost 20 years in the pharmaceutical industry (medical and regulatory affairs), I joined the Foundation for Rare Diseases (FFRD) as a head of research valorisation and public-private partnerships with a focus on rare diseases and orphan drugs. FFRD is a scientific cooperation foundation and a coordinator and accelerator of research on all rare diseases. Its objectives are to finance and support academic research. I also lead a European public-private call within the framework of the European Joint Programme on Rare Diseases (EJP RD)